OCD and Severe Intellectual Disability – How Can We Help?

IDObsessive-compulsive behaviors can occur in a wide range of psychiatric and developmental disorders.  This article was written by a behavior specialist who works at a day program for individuals with severe Intellectual Disabilities (ID). She shares how she helped one of her clients reduces his compulsive behaviors.

When I entered the human services field, I met quite a few individuals diagnosed with Intellectual Disabilities who also had an OCD diagnosis. When I witnessed their symptoms, I thought of friends I have with OCD who manage their OCD successfully through learningf about their OCD, seeing a therapist, utilizing cognitive behavioral therapy, and having a close support system of family and friends. I wondered whether similar approaches might work for compulsions of individuals with an Intellectual Disability.

One individual, I’ll call him Aaron, attends my day program and exhibits significant compulsive behavior on a daily basis. Aaron’s compulsive behaviors include pacing, moving furniture around, hand/elbow/head tapping, loud vocalizations, and buying numerous sodas from the vending machine. If his compulsive behavior is interrupted, he becomes aggressive and violent. I first met Aaron when I was called to help with one of his aggressive outbursts. He was yelling loudly, attempting to hit and kick his peers, pacing around in circles, and punching himself in the head.

Aaron is non-verbal, does not use sign language or picture icons, and communicates primarily through movement. While maintaining a safe distance, I raised my hands in the air to communicate my question gesturally. He began pointing repeatedly down the hallway. One of my co-workers said, “He wants a soda.” After confirming this fit within his food and drink guidelines, I turned my attention to him and said, “Let’s go to the vending machine.”

I walked with him down the hallway and observed the tension in his body decrease as he ceased his attempts to be aggressive. He bought a soda, and we sat down. He took 30 minutes to drink the soda, tapping the table and his own elbows numerous times as well as rearranging the position of his chair over and over again.

When Aaron was finished with his soda, he joined a group of peers playing ball for about ten minutes before becoming agitated again and gesturing to the vending machine. I was faced with a dilemma — how many sodas do I let him buy? On the one hand, I would be enabling his OCD behavior. On the other hand, if I didn’t allow him to buy the sodas, he could hurt one of his peers and since he is an adult with no medical restriction governing his fluid or soda intake, purchasing it is his right. I opted to spend the rest of the day with him and observe his behavior.

After that day I had many questions. Primarily, how could I help?

I had seen that Aaron’s aggression stemmed from anxiety and I felt this had to be addressed to ensure everyone’s safety. I read his file to learn more about him, and discovered that he was already taking medication to treat his OCD and saw a psychiatrist every 6 months with his mother. I decided to call his mother to gain more information.

During our conversation, I described to Aaron’s mother what I had observed in the day program and she told me that was typical behavior for her son. We worked out a better system of getting information about Aaron’s behavior to his psychiatrist and she shared helpful information about things Aaron enjoyed, such as sorting colored blocks.

With this new information, I met with my co-workers and we created a schedule for Aaron to keep him busy with things he liked doing. The schedule would help him to know what to expect from his day. We included group activities, two opportunities to buy a soda, sorting, puzzle time, and taking out the trash. We agreed to work as a team to consistently make those tasks a part of his daily routine.

Once we implemented this schedule, we saw a decrease in Aaron’s aggressive behavior. I believe this is because he was occupied doing things he enjoyed and had less opportunity to focus on his compulsive behavior. He still has some compulsive behaviors, but we do not interrupt these behaviors as they are not harmful to anyone and do not recur as often.

Although I can’t verbally communicate with Aaron about his thoughts, feelings, or obsessive thoughts, I have gotten to know him well. I believe that his OCD symptoms have improved since we implemented treatment options to reduce his anxiety and boredom and increase his participation in pleasant activities. I am grateful for the experience of working with and learning from Aaron and I hope that with the support of his psychiatrist, his mother, and the day program his improvement will continue.

 

 

How to Apply for Disability for Severe OCD

(Thank you to Ram Meyyappan for this very helpful information for OCD sufferers with disabling symptoms:)

If you suffer from severe Obsessive Compulsive Disorder (OCD) that makes it impossible for you to maintain gainful employment, then you may be able to qualify for Social Security Disability (SSD) Benefits.

Social Security Disability Programs and OCD

There are two programs available through the Social Security Administration (SSA):

  • Social Security Disability Insurance (SSDI)
  • Supplemental Security Income (SSI)

To receive benefits under either program, you must meet the SSA’s basic disability definition and must additionally satisfy the technical eligibility requirements for the program as well.

The SSA’s definition of disability requires your condition:

  • Is medically determinable, which simply means provable through acceptable medical means
  • Has lasted, or is expected to last, at least 12 months, or is a terminal condition
  • Can be proven to be so severe that it prevents you from maintaining gainful employment

The technical eligibility rules for SSDI include having sufficient work credits and meeting the monthly income limitations.  Learn more here.

For SSI benefits, you must have very limited income and other financial resources available to you.  Learn more about this need-based program here.

OCD as a Medically Determinable Disability

The SSA follows standard procedures in reviewing applications to see if they contain the appropriate evidence to prove a medically determinable disability.

For OCD, the first step in the process is to see if your application meets the requirements found in the Blue Book  under Section 12.06 – Anxiety-related Disorders, which requires you experience at least three of the following symptoms along with your persistent anxiety:

  • Tension in your motor muscles
  • Uncontrolled hyperactivity affecting your nervous system
  • Consistent problems with feeling apprehensive
  • Pronounced issues with always needing to be on guard or on watch, known as vigilance and scanning

You can also meet the listing in Section 12.06 by proving you experience one of the following:

  • Ongoing and irrational, uncontrollable fears related to certain activities, situations, objects, or other circumstances, including a pronounced tendency to avoid that which causes your fears
  • Severe and frequent panic attacks, occurring at least once a week
  • Ongoing obsessive or compulsive urges and behaviors that cause pronounced distress and disruption in your daily activities
  • Intrusive and ongoing memories or flashbacks to the traumatic experiences

Your medical records must also prove you either:

Cannot function at all outside of your own home, without constant monitoring and support

OR

You experience at least two of the following limitations to your activities of daily living:

  • Pronounced difficulty completing normal, daily tasks
  • Severe struggles with social functioning
  • An inability to concentrate, remaining on task, or complete activities at a “normal” or reasonable pace
  • Repeated episodes of decompensation, which are periods during which your symptoms that may have been relatively under control revert to a pronounced state again

Qualifying for SSD under a Medical Vocational Allowance

Even if your OCD does not meet the listing in Section 12.06 of the SSA’s Blue Book, you may still be able to qualify for disability benefits. To do so, you will need to prove your functional capacity is so severely affected by your condition that it prevents you from maintaining gainful employment.

After reviewing your claim under the listing in Section 12.06, the SSA will then conduct an RFC analysis to see if you qualify for benefits under what is known as a medical vocational allowance (MVA).

You and your doctor will need to complete a functional analysis report form detailing the ways in which your OCD impacts your “activities of daily living” and your ability to complete normal job functions and perform everyday activities in your personal life as well.

Completing Your Application and What to Expect

There are multiple ways to apply for SSD benefits. You can:

  • Complete and submit your application on the SSA’s website,
  • Under some circumstances, make arrangements for a phone interview to complete your application,
  •  Set an appointment to complete your application in person at your local SSA office, with the help of an SSA representative,
  • Fill out all the required forms as hardcopy documents you get from the SSA office or download from the Internet.

You should work closely with your doctor to document your OCD and its effects on your everyday abilities. You may additionally want to seek the assistance of a Social Security advocate or attorney, particularly if your OCD does not meet the listing in the SSA’s Blue Book for the condition.

Most disability applications, regardless of condition, are denied at the initial review stage.

If your OCD application is denied, you will need to request a reconsideration review and potentially an appeal hearing to continue trying for benefits.

A disability attorney or advocate can assist you throughout the entire process and can potentially increase your chances of eventually being approved for benefits.

For more information contact:

Ram Meyyappan

Social Security Disability Help

www.disability-benefits-help.org/blog